Invisibility in the healthcare system - Barriers and challenges in gynecological care for women with disabilities
DOI:
https://doi.org/10.26754/ojs_ais/accionesinvestigsoc.20254611108Keywords:
Disability, Gender, reproductive health, sexual and reproductive rightsAbstract
Introduction: The intersection between gender and disability has emerged as a crucial area of study, evidencing the double discrimination faced by women with disabilities, particularly in the field of gynecological health. This problem requires priority attention from social work and public health. In this context, the main objective of this paper is to analyze the barriers faced by women with disabilities in accessing gynecological health services, exploring the intersection between gender and disability.
Methods and materials: A systematic literature review was conducted following PRISMA guidelines. Studies in English, Spanish or Portuguese, addressing gynecological care or reproductive health of women with disabilities, were included. Studies had to be empirical, systematically reviewed or meta-analysed, excluding those on temporary disabilities, without original empirical data or focused only on pediatric aspects.
Results: The studies identified multiple barriers at the national, health system, individual, community, and economic levels that restrict the access of people with disabilities to gynecological and reproductive health services, especially in low- and middle-income countries. Negative attitudes, stigma and discrimination towards sexuality and motherhood of this group stand out.
Discussion: Faced with this scenario, the studies propose multi-level strategies focused on the transformation of health systems, training of providers, improving accessibility, empowerment of people with disabilities and community awareness, framed within respect for human rights.
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References
Addlakha, R., Price, J., & Heidari, S. (2017). Disability and sexuality: claiming sexual and reproductive rights. Reproductive Health Matters, 25(50), 4-9. https://doi.org/10.1080/09688080.2017.1336375 DOI: https://doi.org/10.1080/09688080.2017.1336375
Bright, T., Wallace, S., & Kuper, H. (2018). A systematic review of access to rehabilitation for people with disabilities in low-and middle-income countries. International journal of environmental research and public health, 15(10), 2165. DOI: https://doi.org/10.3390/ijerph15102165
https://doi.org/10.3390/ijerph15102165
Casebolt, M. T. (2020). Barriers to reproductive health services for women with disability in low-and middle-income countries: a review of the literature. Sexual & Reproductive Healthcare, 24, 100485. https://doi.org/10.1016/j.srhc.2020.100485 DOI: https://doi.org/10.1016/j.srhc.2020.100485
Crenshaw, K. (2013). Demarginalizing the intersection of race and sex: A black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. In Feminist legal theories (pp. 23-51). Routledge.
Devine, A., Ignacio, R., Prenter, K., Temminghoff, L., Gill-Atkinson, L., Zayas, J., ... & Vaughan, C. (2017). “Freedom to go where I want”: improving access to sexual and reproductive health for women with disabilities in the Philippines. Reproductive health matters, 25(50), 55-65. https://doi.org/10.1080/09688080.2017.1319732 DOI: https://doi.org/10.1080/09688080.2017.1319732
Dominelli, L. (2017). Feminist social work theory and practice. Bloomsbury Publishing. DOI: https://doi.org/10.4324/9781315183213-2
Esmail, S., Darry, K., Walter, A., & Knupp, H. (2010). Attitudes and perceptions towards disability and sexuality. Disability and rehabilitation, 32(14), 1148-1155. https://doi.org/10.3109/09638280903419277 DOI: https://doi.org/10.3109/09638280903419277
Flynn, E. (2016). Disabled justice: Access to justice and the UN Convention on the Rights of Persons with Disabilities. Routledge. DOI: https://doi.org/10.1007/978-3-319-43790-3_17
Frohmader, C., & Ortoleva, S. (2014). The sexual and reproductive rights of women and girls with disabilities. In ICPD International Conference on Population and Development Beyond.
Gelberg, L., Browner, C. H., Lejano, E., & Arangua, L. (2004). Access to women's health care: a qualitative study of barriers perceived by homeless women. Women & health, 40(2), 87-100. https://doi.org/10.1300/J013v40n02_06 DOI: https://doi.org/10.1300/J013v40n02_06
Gibson, B. E., & Mykitiuk, R. (2012). Health care access and support for disabled women in Canada: falling short of the UN Convention on the Rights of Persons with Disabilities: a qualitative study. Women's health Issues, 22(1), e111-e118. https://doi.org/10.1016/j.whi.2011.07.011 DOI: https://doi.org/10.1016/j.whi.2011.07.011
Hashemi, G., Wickenden, M., Bright, T., & Kuper, H. (2022). Barriers to accessing primary healthcare services for people with disabilities in low and middle-income countries, a Meta-synthesis of qualitative studies. Disability and rehabilitation, 44(8), 1207-1220. https://doi.org/10.1080/09638288.2020.1817984 DOI: https://doi.org/10.1080/09638288.2020.1817984
Horner-Johnson, W., Fujiura, G. T., & Goode, T. D. (2014). Promoting a new research agenda: Health disparities research at the intersection of disability, race, and ethnicity. Medical Care, 52, S1-S2. 10.1097/MLR.0000000000000220 DOI: https://doi.org/10.1097/MLR.0000000000000220
Kallianes, V., & Rubenfeld, P. (2014). Disabled Women and Reproductive Rights. In Reproduction and Society: Interdisciplinary Readings (pp. 219-232). Routledge.
Lebrasseur, A., Fortin-Bédard, N., Lettre, J., Bussières, E. L., Best, K., Boucher, N., ... & Routhier, F. (2021). Impact of COVID-19 on people with physical disabilities: a rapid review. Disability and health journal, 14(1), 101014. https://doi.org/10.1016/j.dhjo.2020.101014 DOI: https://doi.org/10.1016/j.dhjo.2020.101014
Lee, K., Devine, A., Marco, M. J., Zayas, J., Gill-Atkinson, L., & Vaughan, C. (2015). Sexual and reproductive health services for women with disability: a qualitative study with service providers in the Philippines. BMC women's health, 15, 1-11. https://doi.org/10.1186/s12905-015-0244-8 DOI: https://doi.org/10.1186/s12905-015-0244-8
Lord, J. E. (2007). Human Rights. YES! Action and advocacy on the rights of persons with disabilities. University of Minnesota Human Rights Center.
Mavuso, S. S. & Maharaj, P. (2015). Access to sexual and reproductive health services: experiences and perspectives of persons with disabilities in Durban, South Africa. Agenda, 29(2), 79-88. DOI: https://doi.org/10.1080/10130950.2015.1043713
McCarthy, M. (2009). Contraception and women with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 22(4), 363-369. https://doi.org/10.1111/j.1468-3148.2008.00464.x DOI: https://doi.org/10.1111/j.1468-3148.2008.00464.x
Moodley, J., & Graham, L. (2015). The importance of intersectionality in disability and gender studies. Agenda, 29(2), 24-33. https://doi.org/10.1080/10130950.2015.1041802 DOI: https://doi.org/10.1080/10130950.2015.1041802
Moodley, J., & Ross, E. (2015). Inequities in health outcomes and access to health care in South Africa: a comparison between persons with and without disabilities. Disability & Society, 30(4), 630-644. https://doi.org/10.1080/09687599.2015.1034846 DOI: https://doi.org/10.1080/09687599.2015.1034846
Nguyen, A. (2020). Challenges for women with disabilities accessing reproductive health care around the world: a scoping review. Sexuality and Disability, 38(3), 371-388. https://doi.org/10.1007/s11195-020-09630-7 DOI: https://doi.org/10.1007/s11195-020-09630-7
Nosek, M. A., Howland, C., Rintala, D. H., Young, M. E., & Chanpong, G. F. (2001). National study of women with physical disabilities. Sexuality and disability, 19, 5-40. https://doi.org/10.1023/A:1010716820677 DOI: https://doi.org/10.1023/A:1010716820677
OMS (2021). Informe mundial sobre la violencia y la salud. OMS, Organización Mundial de la Salud.
Page, M. J., McKenzie, J. E., Bossuyt, P. M., Boutron, I., Hoffmann, T. C., Mulrow, C. D., Shamseer, L., Tetzlaff, J. M., Akl, E. A., Brennan, S. E., Chou, R., Glanville, J., Grimshaw, J. M., Hróbjartsson, A., Lalu, M. M., Li, T., Loder, E. W., Mayo-Wilson, E., McDonald, S., ... Moher, D. (2021). The PRISMA 2020 statement: An updated guideline for reporting systematic reviews. BMJ, n71. https://doi.org/10.1136/bmj.n71 DOI: https://doi.org/10.1136/bmj.n71
Pérez-Curiel, P., Vicente, E., Moran, M. L., & Gómez, L. E. (2023). The right to sexuality, reproductive health, and found a family for people with intellectual disability: A systematic review. International Journal of Environmental Research and Public Health, 20(2), 1587. https://doi.org/10.3390/ijerph20021587 DOI: https://doi.org/10.3390/ijerph20021587
Read, S., Heslop, P., Turner, S., Mason-Angelow, V., Tilbury, N., Miles, C., & Hatton, C. (2018). Disabled people’s experiences of accessing reasonable adjustments in hospitals: a qualitative study. BMC Health Services Research, 18, 1-10. https://doi.org/10.1186/s12913-018-3757-7 DOI: https://doi.org/10.1186/s12913-018-3757-7
Rio‐Poncela, AM, & Rojas‐Pernia, S. (2024). Maternidad y discapacidad intelectual en España: dificultades vividas y deseos compartidos de cambio. British Journal of Learning Disabilities, 52 (2), 236-247. https://doi.org/10.1111/bld.12571 DOI: https://doi.org/10.1111/bld.12571
Sakellariou, D., Malfitano, A. P. S., & Rotarou, E. S. (2020). Disability inclusiveness of government responses to COVID-19 in South America: a framework analysis study. International journal for equity in health, 19, 1-10. https://doi.org/10.1186/s12939-020-01244-x DOI: https://doi.org/10.1186/s12939-020-01244-x
Servais, L. (2006). Sexual health care in persons with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 12(1), 48–56. https://doi.org/10.1002/mrdd.20093 DOI: https://doi.org/10.1002/mrdd.20093
Shakespeare, T. (2014). Disability rights and wrongs revisited. Routledge. DOI: https://doi.org/10.4324/9781315887456
Signore, C., Spong, C. Y., Krotoski, D., Shinowara, N. L., & Blackwell, S. C. (2011). Pregnancy in women with physical disabilities. Obstetrics & Gynecology, 117(4), 935-947. 10.1097/AOG.0b013e3182118d59 DOI: https://doi.org/10.1097/AOG.0b013e3182118d59
Sonalkar, S., Chavez, V., McClusky, J., Hunter, T. A., & Mollen, C. J. (2020). Gynecologic care for women with physical disabilities: a qualitative study of patients and providers. Women's Health Issues, 30(2), 136-141. https://doi.org/10.1016/j.whi.2019.10.002 DOI: https://doi.org/10.1016/j.whi.2019.10.002
Steele, L. (2008). Making sense of the Family Court's decisions on the non-therapeutic sterilisation of girls with intellectual disability. Australian Journal of Family Law, 22(1), 1-23.
Thomas, C. (1999). Female forms: Experiencing and understanding disability. Open University Press.
Tilley, E., Walmsley, J., Earle, S., y Atkinson, D. (2012). 'El silencio ruge': esterilización, derechos reproductivos y mujeres con discapacidad intelectual. Disability & Society, 27 (3), 413-426. https://doi.org/10.1080/09687599.2012.654991 DOI: https://doi.org/10.1080/09687599.2012.654991
UNFPA (2020). Impact of the COVID-19 Pandemic on Family Planning and Ending Gender-based Violence, Female Genital Mutilation and Child Marriage. United Nations Population Fund
United Nations. (2006). Convention on the Rights of Persons with Disabilities. Treaty Series, 2515, 3.
WHO. (2011). World report on disability. World Health Organization.
Yupanqui-Concha, A., Hichins-Arismendi, M., Mandiola-Godoy, D., Rodríguez-Garrido, P., & Rotarou, ES (2024). Acceso a servicios de salud sexual y reproductiva en Chile: mujeres con discapacidad y su experiencia con la violencia ginecológica y obstétrica. Investigación en sexualidad y política social, 1-14. https://doi.org/10.22355/exaequo.2022.46.0 6
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